Wednesday, November 25, 2009

Engage with Grace -- Reprise

Last Thanksgiving weekend, many of us bloggers participated in the first documented "blog rally" to promote Engage With Grace , a movement aimed at having all of us understand and communicate our end-of-life wishes.


It was a great success, with over 100 bloggers in the healthcare space and beyond participating and spreading the word. Plus, it was timed to coincide with a weekend when most of us are with the very people with whom we should be having these tough conversations -- our closest friends and family.

Our original mission -- to get more and more people talking about their end of life wishes -- hasn't changed. But it's been quite a year, so we thought this holiday, we'd try something different.

A bit of levity.

At the heart of Engage With Grace are five questions designed to get the conversation started. We've included them at the end of this post. They're not easy questions, but they are important.

To help ease us into these tough questions, and in the spirit of the season, we thought we�d start with five parallel questions that ARE pretty easy to answer:





Silly? Maybe. But it underscores how having a template like this -- just five questions in plain, simple language -- can deflate some of the complexity, formality and even misnomers that have sometimes surrounded the end-of-life discussion.

So with that, we've included the five questions from Engage With Grace below. Think about them, document them, share them.

Over the past year there's been a lot of discussion around end of life. And we've been fortunate to hear a lot of the more uplifting stories, as folks have used these five questions to initiate the conversation.

One man shared how surprised he was to learn that his wife's preferences were not what he expected. Befitting this holiday, The One Slide now stands sentry on their fridge.

Wishing you and yours a holiday that's fulfilling in all the right ways.




(To learn more please go to www.engagewithgrace.org. This post was written by Alexandra Drane and the Engage With Grace team. )

Tuesday, November 17, 2009

And the Winners Are...

There was an unusual twist to the 2009 MITSS HOPE Award -- voting by an independent Selection Committee resulted in a tie! This year's winners were announced on Thursday, November 12th, at the MITSS 8th Annual Dinner and Fundraiser held at the Boston Marriott Copley Place.

This year's sponsor, rL Solutions' CEO and President, Sanjay Malaviya, presented the prestigious award to Patty Skolnik of Colorado Citizens for Accountability (CCA); and Sue Scott, Myra McCoig, and Laura Hirschinger of the forYOU Team from the University of Missouri Health System.

Ms. Skolnik was rewarded for her work in founding CCA after the tragic death of her son, Michael. CCA is a grassroots patient safety organization that has provided support and resources to thousands of individuals and families nationwide since 2005.

Ms. Scott, Ms. McCoig, and Ms. Hirschinger were recognized for their important work with the forYOU Team, a comprehensive approach for providing emotional peer support to clinicians, beginning immediately after critical events. Look for more information about these amazing winners and their programs in the Winter edition of the MITSS Newsletter coming in December.

It was a record year for submissions -- the depth and breadth of the work being done around the country that is aligned with our mission of Supporting Healing and Restoring Hope is astounding. We would not only like to congratulate our winners on their most deserving award, but we would like to honor everyone who submitted an entry. Keep up the important work!

Friday, November 6, 2009

You May Have Noticed...

...that this space has a bit more quiet than usual. That's because things have been quite busy of late. It's that time of year again -- fundraising season!

We hope that you will be able to join us next Thursday, November 12th, 2009, at the Boston Marriottt Copley Place for our Eighth Annual Dinner and Fundraiser. Cocktails and raffles begin at 5:30 pm, and the program starts promptly at 7 pm. It promises to be an extraordinary evening, and we hope that you will be there to celebrate and support MITSS!

If you cannot attend, but you would still like to help out, visit our online auction. Click here to view and bid on some terrific items. Start your holiday shopping now, but don't delay -- the online auction closes on Monday, November 9th!

Sunday, November 1, 2009

MITSS Online Auction is now open

LET THE BIDDING BEGIN! The MITSS 2009 Online Auction is now open. Don't be outbid -- win some terrific prizes, all for a great cause!!!

Click here to start your bidding.

All the funds raised will assist MITSS to continue doing our work of "Supporting Healing. Restoring Hope." to patients, families and clinicians following adverse medical events.

Friday, October 23, 2009

Patient Safety Advocate Featured on Tonight's 20/20

Patient Safety Advocate, Alicia Cole, is featured on ABC's 20/20 tonight. Don't miss it -- she has an important story to tell:

Dear Fellow Advocates,

My story will be highlighted in the upcoming 20/20 show featuring the much anticipated new book 'SuperFreakonomics': Challenging Conventional Wisdom' There is a chapter in the book addressing hospital infections. Please be sure to watch if you can!


ABC 20/20
Friday, Oct 23, 2009 10:00 PM
Hand Washing Rate Low Among Doctors
Actress Nearly Died From 'Flesh-Eating Disease;' 'SuperFreakonomics' Authors Say Hospital Infections Are Preventable
When you are very sick, you go to the hospital to get better. But what if the hospital you choose actually makes you sicker, or even kills you?

Go to
http://abcnews.go.com/2020 for a preview!

** I would love it if some of you would share your experiences in the comment section on the ABC website. People who come to the site and read the article need to know this is happening ALL OVER and everyone who gets an infection is not 'sick' - Many people are being infected following routine procedures due to carelessness.

Thank you very much....Alicia


Sunday, October 18, 2009

LOOKING FOR YOUR INPUT

Our friends at IHI (Institute for Healthcare Improvement) are looking for your input....

Don Berwick and Tom Nolan are asking for your input on how to design a low-cost, high-quality health care system for the future. To learn more, submit your ideas and stories, and engage in a conversation about health system transformation, click here.

Tuesday, October 6, 2009

The Healing Garden

Becky Martins from Voice4Patients sent along this note about an important project. The Healing Garden is a living memorial dedicated to those patients and their loved ones who have suffered a medical error.

I became a patient safety advocate following my father's preventable death in 2000 and founded Voice4Patients.com; a comprehensive web resource that provides patient safety information for consumers. Prior to that, I had been a long time advocate for end stage renal disease patients.

A number of years ago, there was a workgroup of consumers who had hoped to obtain the funding to buy land and have a memorial wall with the names of victims of medical error. As you can imagine, land in DC is expensive. Still, survivors wanted a way to honor their loved ones.

The living memorial garden has been created as a healing space to reflect upon and honor those whose journeys ended before we were ready to say our good-byes, as well for those who have experienced a medical trauma and live with the lingering emotional and physical effects. The garden includes a 40' diameter medicine wheel. There are four sections of flowers planted around the wheel in honor of the children, spouses, siblings and friends, and our elders. We had requests from those who work steadfastly everyday in the healthcare system, who also asked to be included to honor their commitment and dedication (and their hope and intention for a safer healthcare system). These champions are reflected in the walking path that leads into the garden area.

The healing space is located in midcoast Maine. There is no fee to have a flower planted, people only need to submit the information of who to plant the flower for and which section of the garden. Our family will be opening the garden to visitors in the Summer of 2010.

Thanks for posting the information,
Becky Martins


They will be planting bulbs this weekend. To make a donation or arrange for a flower to be planted, visit http://www.voice4patients.com/other_content/Living_Memorial%20Garden_Medical_Harm.pdf.

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